‘My little boy died on Christmas in his festive pyjamas just three years after his brother’
Stephanie and Adam Curry’s first son lived for just 40 minutes, and the couple faced a second tragedy when their little boy, Teddy, died on Christmas Day last year.
By Ann Cusack & Zoe Forsey Lifestyle Editor
- 13:43, 1 DEC 2020
Stephanie and Adam Curry’s world fell apart when their gorgeous little boy, Louis, died in December 2016.
Then just three years later, on Christmas Day last year, they had to say goodbye to their two-year-old son, Teddy, as he lost his battle with a rare genetic condition.
The brave little boy was wearing his new Christmas pyjamas when he died in his heartbroken mum’s arms. Stephanie, a 34-year-old nurse, says: “Teddy was born one year after Louis, both boys were born just before Christmas and Teddy died at Christmas. “It gives me great comfort to know that my boys are together now. Before his death, Teddy completed a bucket list, which included a visit to Santa, a paddle in the sea, trick a treating, pumpkin picking, and visiting Blackpool lights.”
Adam and Stephanie met 14 years ago and were delighted when she fell pregnant in 2016 with their first child. The pregnancy went well but at 20 weeks the scan showed their baby had excess fluid around his brain. Tests showed he had the most severe form of spina bifida and they were advised to end the pregnancy. After much agonising, they opted for a compassionate miscarriage at 21 weeks, on December 4 2016. Stephanie, from Liverpool, says: “I had to take a tablet and I went into labour. We were heartbroken. We didn’t want our boy to suffer any longer and it seemed like the kindest choice. It took three days for the baby to be born and it was horrendous.”
Baby Louis lived for 40 minutes. The couple had the chance to baptise him and say goodbye. Stephanie says: “The coroner insisted on a full inquest for Louis which was very harrowing.”
The couple were anxious to try for another baby but were warned the chances of another baby with spina bifida were dramatically increased. Stephanie fell pregnant in March 2017. Scans showed no problems at all and the couple were hugely relieved. Baby Teddy was born on December 7, 2017 almost exactly a year after his big brother, Louis. Stephanie says: “I had a water birth and it was lovely, so peaceful. We couldn’t wait to meet our baby.”
Baby Teddy at first appeared perfectly healthy but medics quickly realised he was struggling to maintain his temperature and he was rushed to special care. Though he was allowed home, five days on, his problems continued. Stephanie says: “Teddy’s development was slower than other babies and we were worried about him. But the doctors told us not to worry, that it might not be anything serious. We were in denial too; we didn’t want to see the problems. We had lost one baby and we wanted everything to be OK this time. He was a lovely little boy, we adored him, and we just wanted to be parents.”
In July 2018, Teddy was diagnosed with peroxisomal disorder, a rare genetic, metabolic condition. His devastated parents were told he was deaf and was also losing his sight. Stephanie says: “We were heartbroken. We didn’t know how long Teddy would live but we knew he wouldn’t make it to adulthood.”
Determined to make the most of their time, Adam and Stephanie embarked on a bucket list of adventures for their little boy, which included paddling in the sea, riding a donkey, having his face painted, seeing Father Christmas, watching a Liverpool FC game, visiting the Blackpool lights, trick a treating, and bouncing on a bouncy castle. Teddy attended Liverpool v Newcastle on Boxing Day 2018 with his family where he met Liverpool manager Jurgen Klopp and Liverpool star Trent Alexander-Arnold. Stephanie says: “Teddy was a lovely, smiley little boy. He loved all the attention and he really cheered people up, wherever he went. He was full of mischief and brought such light and happiness for us. He loved listening to classical music and also to whistling! I downloaded the world whistling championships onto my phone so we could play it for him wherever we went.”
But during 2019, Teddy began suffering seizures and his health deteriorated. In December he was admitted to hospital with breathing difficulties but was allowed home again on Christmas Eve. Stephanie says: “Teddy loved Christmas because of the lights and the fuss; he liked anything sensory because he could sense the lights despite his blindness. We had put up a tree and we bought him lots of presents. We also booked a holiday for him, but we knew the end was coming. We had been to see Santa and had bought Christmas pyjamas for Teddy to match with his cousins. On Christmas Eve, Teddy slept with us and Adam and I took it in turns to watch over him.”
On Christmas Day, at lunchtime, Teddy died in his mother’s arms wearing his Christmas pyjamas. Stephanie says: “Teddy opened his eyes and looked at us both for the last time. And then, very peacefully, he passed away. It was totally heart-breaking but also we knew that his struggle was at an end.”
Teddy’s funeral was held on January 3 this year, where his parents chose ‘How Long Will I Love You,’ and ‘Lullaby’, and Stephanie also wrote a poem.